HStory

Understanding hs

Recent timeline of hidradenitis suppurativa (HS)

Recent timeline of hidradenitis suppurativa (HS)

Hidradenitis suppurativa—or HS—awareness and research have been growing. Whether you know a little about HS or a lot, there’s something here for you because today there are more answers and treatment options than ever before. 

If you have HS, there’s never been a better time to make your own HStory-making moment!

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  • Image
    Icon: Hair follicles
    1990s

    Research leads to a better grasp of the link between HS and specific cells in hair follicles

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    Icon: stack of books
    2009

    The HS Foundation adopts an internationally recognized definition of HS

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    Icon: microscope
    2011

    New studies point to higher levels of immune proteins in people with HS

  • Image
    Icon: genetics
    2015

    FDA approves the first biologic for the treatment of HS

  • Image
    Icon: clipboard
    2019

    The North American Clinical Management Guidelines for HS are released

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    Icon: history scroll
    2024

    The Make HStory website is launched, ushering in a new era of HS awareness and advocacy

What’s Your HStory?

What does your HS timeline look like? Find out by answering a few questions to create your personal HStory—and use it to have better conversations with your dermatologist so you can get the care you need.  

START
 
01
How old were you when you first
experienced HS symptoms?
Edit option
12 years old

1. How old were you when you first experienced HS symptoms?

 

 
02
How old were you when you were formally diagnosed?
23 years old

2. How old were you when you were formally diagnosed?

 

 
03
How severe are your HS symptoms
today?
7

3. How severe are your HS symptoms today?

Mild
1
2
3
4
5
6
7
8
9
10
Severe
 
04
What triggers your HS?
Food, Environment, Lifestyle, Stress

4. What triggers your HS?
CHOOSE all that apply.

 
05
What medications have you taken for
your HS?
Oral antibiotics, Topical antibiotics, Biologics, Steroid injections, Hormonal therapy

5. What medications have you taken for your HS?
CHOOSE all that apply.

 
06
What non-medication treatments have you tried for your HS?
Laser therapy, Surgery

6. What non‑medication treatments have you tried for your HS? CHOOSE all that apply.

 
07
Do you experience any of the
following emotions more frequently
when dealing with HS?
Frustration, Sadness, Isolation, Anxiety, Stress

7. Do you experience any of the following emotions more frequently when dealing with HS? CHOOSE all that apply.

 
 
 
 
 
 
 
 

1. How old were you when you first experienced HS symptoms?

 

 
 
 
 
 
 
 
 

2. How old were you when you were formally diagnosed?

 

 
 
 
 
 
 
 
 

3. How severe are your HS symptoms today?

Mild
1
2
3
4
5
6
7
8
9
10
Mild
Severe
Severe
 
 
 
 
 
 
 
 

4. What triggers your HS?
CHOOSE all that apply.

Food
Lifestyle
Environment/Weather
Stress
Hormones
Not Sure
 
 
 
 
 
 
 
 

5. What medications have you taken for your HS?
CHOOSE all that apply.

Oral antibiotics
Topical antibiotics
Topical creams and ointments
Biologics
Steroid injections
Hormonal therapy
Retinoids
Metformin
Over-the-counter pain medication 
(like ibuprofen and acetaminophen)
Prescription pain medication
Other
 
 
 
 
 
 
 
 

6. What non‑medication treatments have you tried for your HS? CHOOSE all that apply.

Laser therapy
Surgery
Warm compresses
Epsom salt baths
Meditation
Loose-fitting clothes
Bleach baths
Supplements
Other
 
 
 
 
 
 
 
 

7. Do you experience any of the following emotions more frequently when dealing with HS? CHOOSE all that apply.

Frustration
Sadness
Isolation
Shame
Stress
Anxiety
Exhaustion
Challenges with intimate relationships
Overwhelmed
Depression
 

Get your HStory!

Now that you’ve completed your HStory, download it to keep it handy—then sign
up below to get more help on how to talk to your dermatologist about your HStory and more!

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